« on: September 22, 2006, 06:05:26 AM »
Hello all, it has been sometime since I posted here, I have thought of you but I have been ill and what time I have been online I have been seeking answers and support. I posted sometime ago that I thought I had Celiac disease or gluten intolerance and that is still true but there is more, changing my diet improved my digestion slightly but my health has continued to deteriorate. It is not that I am "better" now but I do have more energy and there is information I wish to share with you.
This morning I spoke with a woman here in Manitoba who was diagnosed with Lyme Disease in 1990, since then she has lost an eye, a kidney, her ovaries and currently has severe arthritis. Because she is unwilling to accept a diagnosis of MS her antibiotics, a weekly shot, is not covered although $40,000.00 worth of meds for MS would be. :shock: NOT!
She is receiving at least one phone call a week from someone like myself who is very ill and is being shuffled round the system without a diagnosis and without treatment. Brandon, my home town, is one of the "hot spots" in the province.
This is clearly a political situation and there is something deeply wrong with what is going on here. You can investigate this for yourself now or when you or someone you love is being devasted by this disease and given what I know now it is clear that we will all be touched by this disease.
Yes, I think I have Lyme Disease and am on the diagnostic road to hell in our current medical system. Let me share with you my symptoms from top to bottom. :lol: Strange tingling bands of almost electric energy in my head, shadows at the corners of my eyes (as if there are small birds flitting at the periphery of my vision), walking as if I had too much to drink but haven't been drinking at all, heart palpitations, pressure on chest, pain in region of heart, alternately fire up my spine or burning and tingling in jagged sheets round my back and across my abdomen, gastric problems, bladder weakness, I've been nauseaus for a year now, rectal bleeding, cyst in breast, multiple fibroids in uterous, lower back pain, deep hip bone pain, arthritis in one knee, numbness in feet, weight loss of 40 pounds in the past year. Oh and I'm forgetful so I have, for sure, forgotten something like the arthritis in one hand. :lol:
My test results: bloodwork normal, EKG fine, ultra-sound showed stone in kidney but tiny, CT Scan showed fibroids in uterous, basically none of my tests show any serious problems although I now know that my doctor, ex-doctor considers Vitamin B12 levels of 226 fine but they are actually low. She is also the doctor who prescribed Ome-Prazole which stops all absorption of Vitamin B. Did you know that a B deficiency can lead to brain damage? According to my doctor I am fine, there is nothing wrong with me, actually I should say the doctor I no longer see because when I pressed her about the rash I had three and half years ago, just before all this began she seemed afraid when I said Lyme, she literally threw her hands up in the air and said, "I'll refer you to an infectious disease specialist and then I'm done with you". I've learned since that an ID doctor is the last person you want to see.
My mother is ill, two of my brothers are ill, one very and one extremely (18 pound weight loss this month) two of my sisters are ill, one on the edge and one very, a niece who was treated with short term antibiotics for Lyme four years ago is now less than 80 pounds and is being treated for anorexia and psychological problems.
I have spent the last year and a half trying to find out what is wrong with me and I am now done with our system as far as help or answers go. I am going to a private clinic that does the testing through the laboratory in the states that is trusted by Lyme patients, the testing done in Canada is NOT to be trusted.
Lyme manifests in different ways, for some it is digestion, for some exhaustion, or mental confusion, or....it is brilliant in the ways it infiltrates your body and attacks what is weakest and most vulnerable.
For the sake of your health and those you love please investigate this for yourself. The popular fiction is that it was discovered in Lyme, CT but this is not true, it was first identified in Europe in 1882. The fiction is that there are "hot spots" but this is a lie, it is everywhere.